Help needed: to find out how people feel about the use of their personal data in fertility research

The Taking pART study, based at the University of Oxford, is looking at how people decide to allow their personal data to be used to research.

If you have been a patient at a fertility clinic in England, you will have likely completed a number of consent forms. One of these is the HFEA ‘Consent for Disclosure’ form (sometimes called HFEA ‘CD’ forms), which asks if you will allow your data to be used for research.

About half of patients who have fertility treatment in the UK agree to sharing their personal data for research, and we would like to know more about what people are told and how they decide.

If you have filled in these forms, please help us by completing a short, anonymous survey (just 5 questions) and tell us about your experiences and thoughts on sharing your personal data for research. We particularly want to hear from people who ticked ‘no’ to sharing data for research.

You can find the survey here: http://bit.ly/2zrZamC